Help make the 2022 version of the Spanish Bag It bag even better! We are recruiting individuals touched by cancer to give input on the bag that best reflect Latino and Hispanic culture, values and belief!
Are you interested? Click here to complete a short form.
Many people are shocked by their cancer diagnosis when no one in their family has been diagnosed with cancer. Cancer is caused by genetic changes (mutations or variants) in a person’s genes, chromosomes, or proteins, but that doesn’t generally mean it’s inherited from a parent. In fact, only about 5-10% of cancers are due to inherited cancer syndrome (germline mutation).
Whether you personally have cancer or not, genetic testing can be helpful for your situation. If you have a cancer that was caused by a mutation, genetic testing can provide important information about how to treat your cancer, as well as your risk for developing a second cancer.
If you have not been diagnosed with cancer, genetic testing can estimate the likelihood of being diagnosed with certain types of cancer in your lifetime. The test can tell you if you have a higher risk than most people of developing those cancers, but not that you will definitely be diagnosed.
Most cancers are caused by acquired (somatic) variants which occur spontaneously during a person’s lifetime, often due to lifestyle and environmental factors. These variants are not passed on to the next generation. Sometimes, cancers can be common in a family but are not due to an inherited gene mutation.
If you do have a genetic mutation, you and your family members can take steps to manage your cancer risks and health care. Children of parents with an inherited cancer mutation have a 50 percent chance of having the mutation themselves.
Discuss your individual circumstances and family history of cancer with your doctor. Seek their advice on whether you should be referred for genetic testing, and which tests to have. Testing is a complex decision on multiple levels, with implications for your family as well. A genetic counselor is highly recommended before and after testing as interpreting the test results can also be complicated.
On this episode of Your Guide Through Cancer podcast, host and Bag It Executive Director, Mindy Griffith speaks with Dr. Rodgers Wilson, a forensic psychiatrist by training with an interest in transcultural psychology. They explore the effects of racial discriminations on health outcomes as well as the importance of early detection in cancer, sharing your personal history with your healthcare team and having the tools to move forward after a cancer diagnosis is critical to living your best life.
With over 30 years of clinical leadership experience, Dr. Wilson has worked with capitated provider organizations to improve population health management and instituted population health management strategies for health plans to impact the clinical care for high-risk clinical populations.
On this episode of Bag It’s podcast, Your Guide Through Cancer, Host & Executive Director, Mindy Griffith, talks with Jonny Imerman.co-founder of ImermanAngels.org, a Chicago-based nonprofit that provides free one-on-one peer cancer support for thousands of cancer families each year & partners with hundreds of hospitals.
Jonny Imerman grew up in Metro Detroit and shortly after graduating from the University of Michigan, he was diagnosed with advanced cancer & experienced 2 years of chemo & surgeries. Jonny also co-founded CLOZTALK.com, a giant e-store where people can buy made-on-demand, high-quality “nonprofit org” brand logo apparel & choose from hundreds of vetted causes.
Learn about the different types of pain, its causes, and how pain can be measured Causes of cancer pain: Pain can be caused by the tumor itself, cancer tests or procedures done, or it can occur as a side effect of treatment (surgery, chemotherapy, immunotherapy, radiation therapy). There can be more than one cause of pain. Some pain ends when treatment ends but some pain can be ongoing and chronic. Types of Pain:
Pain Severity: Everyone experiences pain differently. It’s a good idea to keep a record of your pain to share with your healthcare team. Using one of the customizable logs in section 2 of Bag It’s My Companion Guidebook is an easy way to track your pain. You can use the scale below to assess your pain’s severity and type, noting when, where, how it feels (e.g. “burning,” “stabbing,” “throbbing) and other pertinent details on the form. Make copies to give to your healthcare team at your next appointment. This will help them to determine a pain management plan tailored just for you. Using a scale from “0” to “10”:
A personalized pain management plan prescribed by your healthcare team could include one or more of the above treatments to improve your quality of life. It’s important to talk openly with your healthcare team if you are experiencing pain. In addition to describing the pain in detail, let them know how it is impacting your daily life.
Palliative care (supportive care)
Palliative care is not hospice care. The aim of palliative, or supportive, care is to improve quality of life and maintain independence by reducing symptoms, managing pain, and supporting patients and their families. The aim of hospice care is to help the patient approach the end of life with peace, respect, and dignity, and it includes palliative care. Palliative care is an approach to care that addresses the person as a whole, not just their disease. The goal is to prevent or treat, as early as possible, the symptoms and side effects of the disease and its treatment, in addition to any related psychological, social, and spiritual problems. You can receive palliative care at any age and at any stage. Receiving palliative care does not mean that you will no longer receive treatment for the disease. People often receive treatment to slow, stop, or eliminate cancer in addition to treatment to ease discomfort. In fact, research shows that people who receive both types of treatment often have less severe symptoms, a better quality of life, and report they are more satisfied with treatment. Ask your healthcare team about the ways palliative care might be helpful to you and your family.
ASCO Answers: Managing Cancer-Related Pain
Recent Comments