Welcome to the Bag It Resource Center

In addition to the tools and resources found in the Bag It bag, we’ve developed this comprehensive online Resource Center designed to be your starting point when you’re researching any of the many topics related to a cancer diagnosis. The Bag It Resource Center is continuously evaluated and updated to ensure we’re providing easy access to the best resources available.

 

Clinical Trials

Cancer clinical trials are research studies that involve people (volunteers) that participate in tests of drugs, procedures, devices or other therapies. There are strict rules in place to ensure the safety of the people participating in the trial. The findings could result in a better way to prevent, diagnose or treat cancer, improve cancer care or a person’s quality of life during or after treatment. Each clinical trial is different in its purpose, protocol, and eligibility requirements. Discuss with your doctor if a clinical trial could potentially be of benefit to you.

ASCO Cancer.net PRE-ACT – short videos about all aspects of clinical trials

ASCO Cancer.net Clinical Trials – general information about clinical trials

Clinical Trials.gov – government database lists publicly and privately supported clinical trials

Caregivers and Family Resources

Some of these organizations provide direct support services, educational materials, practical tips and how-tos for caring for someone with cancer.
Others provide programs and resources specifically to ensure the health and well-being of care partners and loved ones, including support groups and professional one-on-one counseling.

Adventure Therapy Foundation – emotional restoration for families impacted by cancer

CancerCare – caregiver education and online support groups (general and cancer specific)

Camp Kesem – supports children through and beyond their parent’s cancer with fun year-round activities, events and a free weeklong summer camp

Caregiver Action Network – Caregiver Action Network listing:  Education, peer support, and resources to family caregivers across the country free of charge, a caregiver help desk

Caring Bridge – communications platform that allows a family to provide health updates to their entire chosen personal community at one time….and receive supportive comments back in one place. Through the Planner, CaringBridge families can also digitally coordinate helpful tasks like meals, errands and even schedule Zoom calls

College Consultants Care – provides FREE college application assistance and financial aid planning to students diagnosed with cancer or have a parent diagnosed with cancer

EduMed – The Caregiver’s Handbook: An Online Resource for Caring for a Loved One

Family Caregiver Alliance – caregiver education, online support groups

Help for Cancer Caregivers – personal caregiver guide

Jack’s Caregiver Coalition – improving the way guys think, feel, and act through every phase of their caregiving journey

Lotsa Helping Hands – organize meals and help for someone in need

Pearlpoint – caregiving tips, nutrition, caregiver handbook

Take Them A Meal – online meal coordination tool

Today’s Caregiver Magazine

National Cancer Institute Publications (download PDFs, ebooks, or Kindle version)

Coping with Advanced Cancer information about dealing with transitions in care, communication with others, and end of life issues.

Facing Forward When Someone you Love Has Completed Cancer Treatmentsupport for Caregivers

Patient Power’s Care Partner Center– supporting care partners and other loved ones through education and advocacy

When Someone You Love Has Advanced Cancer – support for Caregivers

When Someone You Love Is Being Treated for Cancer support for Caregiver

When Your Parent Has CancerA Guide for Teens

See Parenting & Fertility for more family resources.

Insurance, Managing Costs, and Financial Assistance Resources

Information about health insurance and disability insurance, support in managing finances and cancer costs during and after treatment. Many organizations offer financial assistance for cancer-related expenses including medications, co-pays, basic needs and other out-of-pocket expenses.

Insurance: Health Insurance, Disability Insurance

CancerCare – health insurance

CancerFinances.org – Cancer Finances, hosted by Triage Cancer, offers a toolkit for individuals diagnosed with cancer and their caregivers to understanding how cancer impacts their finances and connects them to financial assistance resources

Cancer Insurance Checklist – the Cancer Insurance Checklist is designed to help you when shopping for insurance on your state’s Health Insurance Marketplace if you have cancer, a history of cancer, or are at risk for cancer

Cancer Legal Resource Centerhealth insurance information

Healthcare.gov – marketplace health insurance

Patient Advocate Foundation – case management, co-pay relief, insurance guide

Triage Cancer offers free educational resources including actionable information on topics such as health insurance, employment issues, finances, and more

 

Managing Costs

CancerCaremanaging the costs of cancer care

Cancer Support Community – managing cancer costs, including medications

Managing Finances From CancerFinances.org

NCI’s Managing and Tracking Costs – tools to help understand your costs, health insurance, medical bills and statements. Learn tips to manage your costs

Financial Assistance

 A Helping Hand – find assistance from organizations providing financial or practical help

Bankrate – cancer costs–resources and help to manage housing expenses during treatment

CancerCarecomprehensive information about financial assistance resources

Cancer Financial Assistance Coalition

College Consultants Care – provides FREE college application assistance and financial aid planning to students diagnosed with cancer or have a parent diagnosed with cancer

Cancer Support Community– a $250 relief grant for people with cancer who are in active treatment. The financial assistance will be limited to food, transportation, housing, utilities, childcare, or other non-medical expenses

Family Reach – dedicated to eradicating the financial barriers that accompany a cancer diagnosis, a widespread issue known as Cancer-Related Financial Toxicity (CRFT)

Medicine Assistance Tool– a search engine to help those with financial need get access to their prescription

Nancy’s List – resource list of integrative therapies and financial assistance 

National Cancer Institutelisting of support organizations

NCCN

Needy Meds – prescription assistance

Pan Foundation – out-of-pocket expense financial assistance

Partnership for Prescription Assistance

Patient Advocate Foundationco-pay relief and other financial assistance

RxHope – patient assistance program for medications

Check out these organizations for topics related to work, healthcare rights, state and federal protections and benefit programs, and important legal documents to protect you and your loved ones.

Legal Rights

Cancer Legal Resource Centerinformation about legal rights regarding employment, health care, and government benefits

Cancer Legal Resource Center Patient Legal Handbookinformation about cancer-related legal issues from diagnosis through survivorship

Patient Advocate Foundation – laws and protections in healthcare and employment

The Americans with Disabilities Act – legal rights for those with disabilities such as cancer

Triage Cancer – education on practical and legal issues that may impact those with cancer and their caregivers

 

Advance Care Planning

American Cancer Societygeneral information about different advance health care directives

American Society of Clinical Oncology (ASCO)putting your health care wishes in writing

Cancer Legal Resource Center Patient Legal Handbook

Five Wishesadvance care planning program

Triage Center – estate planning resources for those coping with cancer and their caregivers

 

Workplace

Cancer and Careersempowers and educates people with cancer to thrive in the workplace

Cancer Legal Resource Center Patient Legal Handbook – information about cancer-related legal issues from diagnosis through survivorship

Family Medical Leave Actentitles eligible employees of covered employers to take unpaid, job- protected leave for specified family and medical reasons

The Americans with Disabilities Act – federal civil rights protections to individuals with disabilities such as cancer

The Equal Employment Opportunity Commission – enforces Federal laws prohibiting employment discrimination

Triage Center – legal and practical resources to help navigate employment & workplace issues after a cancer diagnosis

Triage Center – animated video on managing side effects at work

 

Parenting and Fertility

These organizations offer support for families dealing with cancer, book lists and tips about talking to children about cancer, fertility and becoming a parent after a cancer diagnosis.

Parenting and Cancer

American Cancer Society – Helping Children When a Family Member Has Cancer

Billy’s Place (Arizona)community, emotional support, support groups, grief, peer support

CancerCare for Kidsfree workships, booklets, counseling, support groups for parents and children of all ages

Cancer Support Community

Children’s Treehouse Foundationbooks, videos, online activities for children of parents with cancer

Tu Nidito, No Child Grieves Alone (Arizona)professional individual support, group support, grief

Yale Cancer Centerparenting tips

 

Camps and Retreats  

ASCO List – list of camps and retreats

Camp Kesemsupports children through and beyond their parent’s cancer with fun year-round activities, events and a free weeklong summer camp.

CancerCarelist of camps and retreats

Little Pink House of Hopepeople with breast cancer and family

Nancy’s Listlist of retreats and camps for families

Needy Medslist of camps and retreats

Project Athena Foundation – athletic adventures

 

Cancer Books

National Cancer Institute When Your Parent Has Cancer – A Guide for Teens

Susan G. Komen’s “What’s Happening to Mom” e-booklet

What Do I Tell the Kids (Cancer Support Community) – discussing cancer with children

When Someone You Love Is Being Treated For Cancer (download PDF, eReader or Kindle)talking with children of different ages

When Your Brother or Sister Has Cancer

Yale Cancer Center Book List for Families and Children – cancer treatment, grief and loss

 

Wish Fulfillment 

ASCO’s list of wish fulfillment organizations for children

 

Fertility

Livestrong Fertilityunderstanding fertility risks and options with a cancer diagnosis

The OncoFertility Consortiumfertility options for cancer survivors

 

Side-Effects

Information about possible side effects during and after cancer treatment and ways to manage them with the help of your healthcare team.

ASCO Answers Palliative Care (download PDF)

ASCO Cancer.Netdescriptions of side effects and how to cope with them

CancerCarebooklets and podcasts on coping with side effects from cancer treatment

Cancer.Net Mobile Appan app to track side effects from cancer treatment

Cook for Your Life – healthy cooking for those touched by cancer

National Cancer Institute Chemotherapy and Youdiscusses side effects from chemotherapy (download PDF, ePub, Kindle formats)

National Cancer Institute Eating Hints – before, during, and after cancer treatment (download PDF, ePub, Kindle formats)

National Cancer Institute Radiation Therapy and Youside effects from radiation therapy (download PDF, ePub, Kindle formats)

Pearlpointmanaging side effects

Patient Resource – Managing Cancer Pain (download PDF)

Pearlpoint Nutrition Consultation(no charge)

Springboard Beyond Cancerhow to manage side effects

ASCO Answers Managing Cancer Painunderstanding and managing cancer pain (download PDF)

ASCO Cancer.nettypes of complementary therapies to manage side effects

ASCO Cancer.netlong-term side effects of cancer treatment and how to manage them

National Cancer Institute – late side effects of cancer treatment and how to manage them

National Cancer Institute Pain Control – support for people with cancer

National Center for Complementary and Integrative Health – definitions and research about complementary and integrative health methods

Pearlpoint Survivorship Handbooklate- and long-term side effects

U.S. Pain Foundation

 

 

Supportive Care (PEER MENTORS, SUPPORT GROUPS, ONLINE COMMUNITIES)

Supportive care helps with the psychological, physical, social, and spiritual effects of cancer, as well as practical needs. It can improve quality of life from the day of diagnosis. Many organizations offer their services at no charge for those with cancer and their caregivers and families.

Emotional Support

4th Angel Programpeer support

American Cancer Society’s Cancer Survivors Network peer support, online discussion boardAmerican Cancer Society (ACS)

ASCOfinding a support buddy: list of support groups, online communities, peer support

CancerCare online support groups and counseling

Cancer Hope Network – one-on-one cancer support

Cancer Support Community – online discussion board, helpline

Facing Our Cancer Risk Empowered – peer support, support groups,online community for hereditary cancer

Friend for Life Cancer Support Network – one on one matched cancer support

Imerman Angelsone on one cancer support

SHARE Cancer Supportnational helpline, educational programs, support groups, online communities, caregiver support, and survivor-patient navigation for breast, ovarian, and uterine cancers

Susan G. Komen – Facebook private support group

Young Survival CoalitionPrivate Facebook group for young women with metastatic breast cancer, peer support

 

Grief

CaringInfogrief and loss

Yale Cancer Center Book Listhelping the family cope with grief

Palliative Care

ASCO Answers Managing Cancer Painunderstanding and managing cancer pain (download PDF)

ASCO Answers Palliative Care (download PDF)

CaringInfo – Palliative Care vs. Hospice Care

Get Palliative Carerequest palliative care to relieve symptoms and stress and improve your quality of life.

National Cancer Institute Pain Control: Support for People With Cancer

Patient Resource – Managing Cancer Pain (download PDF)

 

Complementary and Integrative Therapies

American Cancer Society Complementary and Alternative Medicinedefinitions and use in cancer care

CancerCare Meditation app – for iPhone

National Center for Complementary and Integrative Healthdefinitions and research about complementary and integrative health methods

National Center for Complementary and Integrative Health-Pain Considering Complementary Approaches (eBook)

 

Survivorship

Cancer survivorship starts at diagnosis. These organizations offer information, tools, and programs to help with all aspects of life both during and after treatment.

Adventure Therapy Foundation – emotional restoration for families impacted by cancer

Cancer Hope Networkone on one cancer support

Cancer Support Communitymultiple support options

Cancer Today Magazine

Crossroads4Hope – A network of cancer support

Healthy Lifestyle, American Institute for Cancer Research

Imerman Angelsone on one cancer support

Jasper – app that gives you an overview of your cancer care at a glance

Livestrong at the YMCA: 12-week exercise program for cancer survivors

Lacuna Loft – online support programs for young adult cancer patients, survivors, and caregivers

My Lifeline (part of Cancer Support Community) – tool for online connection with family and friends

National Cancer Institute’s Facing Forward – Life After Cancer Treatment (download PDF, epub or Kindle formats)

Patient Empowerment Network– Online resources to help patients find their voice at every step of their journey

Pearlpoint – nutrition by cancer type

Prevent Cancer Foundationfamilies and children

SHARE Cancer Supportnational helpline, educational programs, support groups, online communities, caregiver support, and survivor-patient navigation for breast, ovarian, and uterine cancers

American Cancer Society Hope Lodgefor temporary housing

American Cancer Society Road to Recovery (Get a Ride to Treatment)transportation assistance

ASCO Answers Guide to Cancer Survivorship (download PDF)

ASCO Answers Palliative Care (download PDF)

ASCO Treatment Summary & Follow Up Care Plan

Ciitizen – helps you collect, summarize, and share your medical records digitally, free of charge

Cook for Your Lifehealthy cooking for those touched by cancer

National Center for Complementary and Integrative Healthdefinitions and research about complementary and integrative health methods

Pearlpoint – nutrition, follow up care, fear of recurrence, survivorship handbook

Pearlpoint Nutrition Consultationno charge

Treatment Summary & Survivorship Care Plans OncoLink Survivorship Care Plan

Triage Cancer – Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through free events, materials, and resources. Triage Cancer offers free educational resources including our Quick Guides and Checklists, animated videos, charts of state laws, and an educational blog that provides actionable information on topics such as health insurance, employment issues, finances, and more.

Wildfire – A one-of-a-kind magazine and writing community designed with themes related to younger survivorship: body, mental health, fertility, parenting with cancer, career, identity after diagnosis, relationships and intimacy, and more.

 

 

 

 

While Bag It took efforts to collect materials only from nationally recognized, research-based publications, Bag It has not independently researched, verified, or otherwise confirmed the accuracy of any of the information provided. The links listed are not intended to be an endorsement of any information or services and should not be construed as medical, legal, or financial advice.