Welcome to the Bag It Resource Center

In addition to the tools and resources found in the Bag It bag, we’ve developed this comprehensive online Resource Center designed to be your starting point when you’re researching any of the many topics related to a cancer diagnosis. The Bag It Resource Center is continuously evaluated and updated to ensure we’re providing easy access to the best resources available.

 

Clinical Trials

Cancer clinical trials are research studies that involve people (volunteers) that participate in tests of drugs, procedures, devices or other therapies. There are strict rules in place to ensure the safety of the people participating in the trial. The findings could result in a better way to prevent, diagnose or treat cancer, improve cancer care or a person’s quality of life during or after treatment. Each clinical trial is different in its purpose, protocol, and eligibility requirements. Discuss with your doctor if a clinical trial could potentially be of benefit to you.

ASCO Cancer.net PRE-ACTShort videos about all aspects of clinical trials

ASCO Cancer.net Clinical TrialsGeneral information about clinical trials

Clinical Trials.govGovernment database lists publicly and privately supported clinical trials

Caregivers and Family Resources

Some of these organizations provide direct support services, educational materials, practical tips and how-tos for caring for someone with cancer.
Others provide programs and resources specifically to ensure the health and well-being of care partners and loved ones, including support groups and professional one-on-one counseling.

Lotsa Helping Hands – organize meals and help for someone in need

Help for Cancer Caregivers – personal caregiver guide

CancerCare – caregiver education and online support groups (general and cancer specific)

Caregiver Action NetworkCaregiver Action Network listing:  Education, peer support, and resources to family caregivers across the country free of charge, a caregiver help desk.

Take Them A Meal – online meal coordination tool

Today’s Caregiver Magazine

Family Caregiver Alliance – caregiver education, online support groups

Pearlpoint – caregiving tips, nutrition, caregiver handbook

Camp Kesemsupports children through and beyond their parent’s cancer with fun year-round activities, events and a free weeklong summer camp.

SNational Cancer Institute Publications (download PDFs, ebooks, or Kindle version)

When Someone You Love Is Being Treated for Cancer Support for Caregiver

When Your Parent Has CancerA Guide for Teens

When Someone You Love Has Advanced Cancer – Support for Caregivers

Facing Forward When Someone you Love Has Completed Cancer TreatmentSupport for Caregivers

 

Coping with Advanced Cancer Information about dealing with transitions in care, communication with others, and end of life issues.

Patient Power’s Care Partner Center Supporting care partners and other loved ones through education and advocacy.

See Parenting & Fertility for more family resources.

Insurance, Managing Costs, and Financial Assistance Resources

Information about health insurance and disability insurance, support in managing finances and cancer costs during and after treatment. Many organizations offer financial assistance for cancer-related expenses including medications, co-pays, basic needs and other out-of-pocket expenses.

Insurance: Health Insurance, Disability Insurance

Cancer Insurance Checklist

CancerFinances.orgfinancial impact of cancer

Healthcare.gov – Marketplace health insurance

Patient Advocate Foundation – case management, co-pay relief, insurance guide

Cancer Legal Resource Center – health insurance information

CancerCare – health insurance

 

Managing Costs

NCI’s Managing and Tracking Costs

Managing Finances From CancerFinances.org

CancerCaremanaging the costs of cancer care

Financial Assistance

Needy Meds – prescription assistance

National Cancer Institutelisting of support organizations

Patient Advocate Foundationco-pay relief and other financial assistance

CancerCarecomprehensive information about financial assistance resources

Medicine Assistance Tool – a search engine to help those with financial need get access to their prescription

College Consultants Care – provides FREE college application assistance and financial aid planning to students diagnosed with cancer or have a parent diagnosed with cancer.

Partnership for Prescription Assistance

Pan Foundationout of pocket expense financial assistance

Cancer Financial Assistance Coalition

RxHope – patient assistance program for medications

Family ReachDedicated to eradicating the financial barriers that accompany a cancer diagnosis, a widespread issue known as Cancer-Related Financial Toxicity (CRFT)

Check out these organizations for topics related to work, healthcare rights, state and federal protections and benefit programs, and important legal documents to protect you and your loved ones.

Legal Rights

Triage Cancer – education on practical and legal issues that may impact those with cancer and their caregivers

The Americans with Disabilities Actlegal rights for those with disabilities such as cancer

Patient Advocate Foundationlaws and protections in healthcare and employment

Cancer Legal Resource Centerinformation about legal rights regarding employment, health care, and government benefits

Cancer Legal Resource Center Patient Legal Handbookinformation about cancer-related legal issues from diagnosis through survivorship

 

Advance Care Planning

Cancer Legal Resource Centertools to ensure your healthcare wishes are carried out

American Cancer Societygeneral information about different advance health care directives

American Society of Clinical Oncology (ASCO)Putting Your Health Care Wishes in Writing

Five Wishesadvance care planning program

Cancer Legal Resource Center Patient Legal Handbook

Workplace

Cancer and Careersempowers and educates people with cancer to thrive in the workplace

The Equal Employment Opportunity Commissionenforces Federal laws prohibiting employment discrimination

Family Medical Leave Actentitles eligible employees of covered employers to take unpaid, job- protected leave for specified family and medical reasons

Cancer Legal Resource Center – information about legal rights regarding employment, health care and government benefits

The Americans with Disabilities Act – federal civil rights protections to individuals with disabilities such as cancer

Cancer Legal Resource Center Patient Legal Handbookinformation about cancer-related legal issues from diagnosis through survivorship

 

Parenting and Fertility

These organizations offer support for families dealing with cancer, book lists and tips about talking to children about cancer, fertility and becoming a parent after a cancer diagnosis.

Parenting and Cancer

Cancer Support Community

American Cancer Society – Helping Children When a Family Member Has Cancer

CancerCare for Kidsfree workships, booklets, counseling, support groups for parents and children of all ages

Camp Kesem – supports children through and beyond their parent’s cancer with fun year-round activities, events and a free weeklong summer camp.

 

Cancer Books

What Do I Tell the Kids (Cancer Support Community) – discussing cancer with children

When Someone You Love Is Being Treated For Cancer (download PDF, eReader or Kindle)talking with children of different ages

Yale Cancer Center Book List for Families and Children – Cancer Treatment, Grief and Loss

 

Fertility

The OncoFertility Consortiumfertility options for cancer survivors

Livestrong Fertilityunderstanding fertility risks and options with a cancer diagnosis

 

Side-Effects

Information about possible side effects during and after cancer treatment and ways to manage them with the help of your healthcare team.

CancerCarebooklets and podcasts on coping with side effects from cancer treatment

ASCO Cancer.Netdescriptions of side effects and how to cope with them

Cancer.Net Mobile Appan app to track side effects from cancer treatment

ASCO Answers Palliative Care (download PDF)

Springboard Beyond Cancerhow to manage side effects

National Cancer Institute Chemotherapy and Youdiscusses side effects from chemotherapy (download PDF, ePub, Kindle formats)

National Cancer Institute Radiation Therapy and Youside effects from radiation therapy (download PDF, ePub, Kindle formats)

Pearlpointmanaging side effects

Patient Resource – Managing Cancer Pain (download PDF)

Cook for Your Life – healthy cooking for those touched by cancer

Pearlpoint Nutrition Consultation – (no charge)

National Cancer Institute Eating Hints – Before, during, and after cancer treatment (download PDF, ePub, Kindle formats)

ASCO Cancer.netTypes of Complementary therapies to manage side effects

ASCO Cancer.netlong-term side effects of cancer treatment and how to manage them

National Cancer Institute – late side effects of cancer treatment and how to manage them

Pearlpoint Survivorship Handbooklate and long-term side effects

U.S. Pain Foundation

ASCO Answers Managing Cancer Painunderstanding and managing cancer pain (download PDF)

National Center for Complementary and Integrative Healthdefinitions and research about complementary and integrative health methods

National Cancer Institute Pain Control: Support for People With Cancer

ASCO Cancer.netTypes of Complementary Therapies to manage side effects

 

Supportive Care—Emotional Support, Palliative Care, Complementary & Integrative Therapies

Supportive care helps with the psychological, physical, social, and spiritual effects of cancer, as well as practical needs. It can improve quality of life from the day of diagnosis. Many organizations offer their services at no charge for those with cancer and their caregivers and families.

.Emotional Support

CancerCareonline support groups and counseling

American Cancer Society (ACS)

Cancer Support Communityface to face, phone and online support options.

Imerman Angelsone on one cancer support.

Cancer Hope Networkone on one cancer support.

SHARE Cancer Supportnational helpline, educational programs, support groups, online communities, caregiver support, and survivor-patient navigation for breast, ovarian, and uterine cancers.

Friend for Life Cancer Support Network – One on one matched cancer support.

 

Grief

CaringInfogrief and loss

Yale Cancer Center Book Listhelping the family cope with grief

Palliative Care

Get Palliative Carerequest palliative care to relieve symptoms and stress and improve your quality of life.

ASCO Answers Palliative Care (download PDF)

CaringInfo – Palliative Care vs. Hospice Care

ASCO Answers Managing Cancer Painunderstanding and managing cancer pain (download PDF)

National Cancer Institute Pain Control: Support for People With Cancer

Patient Resource – Managing Cancer Pain (download PDF)

 

Complementary and Integrative Therapies

National Center for Complementary and Integrative Healthdefinitions and research about complementary and integrative health methods

CancerCare Meditation app – for iPhone

American Cancer Society Complementary and Alternative Medicinedefinitions and use in cancer care

National Center for Complementary and Integrative Health-Pain: Considering Complementary Approaches (eBook)

 

Survivorship

Cancer survivorship starts at diagnosis. These organizations offer information, tools, and programs to help with all aspects of life both during and after treatment.

National Cancer Institute’s Facing Forward – Life After Cancer Treatment (download PDF, epub or Kindle formats)

Cancer Support Communitymultiple support options

Imerman Angelsone on one cancer support

Cancer Hope Networkone on one cancer support

Pearlpoint – nutrition by cancer type

My Lifeline (part of Cancer Support Community)tool for online connection with family and friends.

Healthy Lifestyle, American Institute for Cancer Research

Prevent Cancer Foundationfamilies and children

Livestrong at the YMCA: 12-week exercise program for cancer survivors.

Palliative Careinformation about how to request palliative care to relieve symptoms and stress and improve your quality of life.

Cancer Today Magazine

Lacuna Loft – online support programs for young adult cancer patients, survivors, and caregivers

SHARE Cancer Supportnational helpline, educational programs, support groups, online communities, caregiver support, and survivor-patient navigation for breast, ovarian, and uterine cancers.

ASCO Answers Palliative Care (download PDF)

Pearlpointnutrition, follow up care, fear of recurrence, survivorship handbook

American Cancer Society Road to Recovery (Get a Ride to Treatment)transportation assistance

American Cancer Society Hope Lodge for temporary housing

Cook for Your Lifehealthy cooking for those touched by cancer

Ciitizen – helps you collect, summarize, and share your medical records digitally, free of charge.

Pearlpoint Nutrition Consultationno charge

ASCO Answers Guide to Cancer Survivorship – PDF format

National Center for Complementary and Integrative Healthdefinitions and research about complementary and integrative health methods.

Treatment Summary & Survivorship Care Plans OncoLink Survivorship Care Plan

ASCO Treatment Summary & Follow Up Care Plan

While Bag It took efforts to collect materials only from nationally recognized, research-based publications, Bag It has not independently researched, verified, or otherwise confirmed the accuracy of any of the information provided. The links listed are not intended to be an endorsement of any information or services and should not be construed as medical, legal, or financial advice.