by Bag It Team | Nov 8, 2023 | Educational Articles
Palliative and hospice care provide similar, but different services for patients and their families that focus on a holistic approach and their quality of life.
Palliative care is a way to help people with serious illnesses feel better physically and emotionally, and it can start at any point in their illness. It works with other types of treatments that aim to cure the illness. By contrast, hospice care is a special kind of palliative care for those with less than six months to live, with a main focus on keeping them comfortable and emotionally-supported during that time.
Here are some important differences between these two kinds of care:
Palliative Care
- Aims to reduce pain and suffering in people with serious illnesses.
Read more from the National Hospice and Palliative Care Organization
- Can start at any stage of the illness, including at diagnosis, and can coexist with treatments, regardless of the person’s expected recovery.
- Can take place in various locations, including hospitals, clinics, or even at home.
- The intensity of medical treatment can vary widely, potentially including strong treatments.
- Often covered by health insurance and integrated into regular medical care.
Hospice Care
- Primarily for individuals with a short life expectancy, often six months or less and involves a team of experts.
- Main goal is to provide maximum comfort rather than aiming for a cure.
- Usually provided at the patient’s home, in a specialized hospice facility, or in a hospital.
- Typically begins when it becomes clear that treatments are not effective, focusing on the patient’s comfort in their final days or months.
- Emphasizes comfort and symptom management, often discontinuing aggressive treatments.
- Often covered by Medicare, Medicaid, or private insurance for eligible patients.
Both palliative care and hospice care provide comfort and support for patients, one throughout cancer or other illness, and the other as one approaches the end of life. Have a conversation with your doctor to figure out the kind of care that’s right for you and your unique situation, so you can live your best life.
Don’t Wait! Bag It Bag and online resources are able to provide ways to empower patients and their families to ask for these services (palliative and hospice care) to improve the quality of life of patients and their families. Order a Bag and explore our Cancer Resource Center.
Additional Resources
by Bag It Team | Oct 11, 2023 | Educational Articles
You’ve likely experienced a fast-paced doctor’s appointment where lots of new and unfamiliar information came at you that was hard to grasp, especially when you were not feeling well. Health information can be complicated and confusing—even for the most highly educated people with advanced literacy skills.
Although many doctors are well-practiced at translating medical jargon (referred to as “doctor speak”) into understandable language for their patients, others may not be as skilled. If you and your healthcare provider come from different backgrounds or cultures, it can also make communication more challenging.
Misunderstandings in medical settings or not having important knowledge about your health and care can lead to bad health outcomes. You might miss out on:
- Understanding your diagnosis and treatment options to make informed decisions
- Knowing what symptoms and side effects to expect and how to manage them
- Taking the right medications in the correct way and at the right times
- Following instructions for home care and follow up care
Taking Control of Your Medical Appointments
Here’s how to be a better self-advocate for your wellbeing by taking an active role during your medical appointments:
- Write down your questions at home and bring them with you to your appointment.
- If you can’t understand information you are given or forms you are asked to complete or sign, don’t be embarrassed to say something to your healthcare provider. Ask questions or have them repeat or rephrase the information using basic words. Making a drawing, a diagram or another type of visual explanation could also be a helpful tool.
- In your own words (paraphrase), repeat back what you heard so the provider can confirm that you understood the information fully and accurately, or explain it further if needed.
- If someone is talking too fast or you can’t hear them well, ask them to speak more slowly or more loudly.
- Ask for a qualified medical interpreter in advance if your doctor is not fluent in the language you are most comfortable using. There are laws requiring most medical facilities to provide this service at no cost to patients.
- Take notes or record the visit (with the doctor’s permission) so you can listen to it again at home.
- Ask for printed information about the medications, test or procedures, treatments and illness or disease (and in your preferred language) being discussed with you. If not is readily available, ask for a reliable resource where you can find the information online.
- Bring someone with you to your appointments as another set of ears, to take notes, or to help with questions.
- Always share your concerns or worries with your provider so you can work together to find a solution.
Additional Resources for You or Your Loved One
by Bag It Team | Aug 14, 2023 | What's New
Amy Cojanis, Bag It Cancer Administrative Services Manager, Mo Osife, Philanthropy/Advocacy Director for Cancer Support Communities of Arizona and Will Grove, Outreach Director of the Brain Injury Alliance of Arizona contributed to a guest editorial on how we can all come together to fight cancer through legislation. We are grateful to these writers and organizations as well as to Arizona co-sponsors like @SenatorSinema @RepRaulGrijalva @RepCiscomani for working to push multi-cancer screening legislation. Read our op-ed on the issue.
by Bag It Team | Jun 12, 2023 | Educational Articles
June is Pride Month, an opportunity to celebrate and recognize the impact of the lesbian, gay, bisexual, transgender and queer individuals in our communities. However, the LGBTQIA+ community continues to have many struggles, including receiving good healthcare, largely due to past experiences or fear of discrimination of providers.
National Institute on Minority Health and Health Disparities (NIMHD) reports that stigmatization, hate-violence, and discrimination are still major barriers to the health and well-being of LGBTQIA+ individuals.
Additional challenges for LGBTQIA+ individuals include a higher risk of certain conditions, less access to health care and worse health outcomes. These are partially due to a lack of data, lack of knowledge from healthcare providers for these patients and issues related to social determinants of health. According to the National LGBT Cancer Network a cluster of lifestyle factors including drinking alcohol, smoking, being an unhealthy weight, HIV and HPV infections, and not going in for screenings are all risk factors found to increase cancer incidence and late-stage diagnosis in this population.
Here are a few additional facts:
- 1 million. The number of LGBTQ+ cancer survivors in the country today (National LGBT Cancer Network, 2020)
- 7 types of cancer disproportionately impact LGBTQ+ people, including anal cancer, breast cancer, cervical cancer, colorectal cancer, lung cancer, prostate cancer, and uterine cancer (Cancer.net)
- Transgender individuals are significantly less likely to be screened for breast and colorectal cancer compared with cisgender individuals (AACR, 2021)
The American Cancer Society estimates approximately 152,000 new cancer cases and
more than 48,785 cancer deaths among the LGBTQ+ people this year.
LGBTIQIA+ Community Resources
Part of Bag It Cancer’s mission is to provide respected resources to everyone concerned about their health or facing a cancer diagnosis. Here are a few of the sources we list on our Populations Groups page in our Cancer Resource Center. These organizations are on the forefront of advocating for and making improvements to healthcare for the entire LGBTIQIA+ community.
- LGBTQ-friendly health care professional databases
- Support for LGBTQ+ Cancer Survivors
- Gov: Transgender Healthcare—Details to consider in the Health Insurance Marketplace.
- National Center for Transgender Equality—Social justice organization devoted to ending discrimination and violence against transgender people. Resources on a range of issues and rights.
- National Coalition for LGBT Health—Works to improve the health and well-being of the LGBT community through federal and local advocacy, education, training, and research.
- National LGBT Cancer Network—Works to improve the lives of LGBT cancer survivors and those at risk through education, training, and advocacy. Includes a directory for LGBT-friendly providers.
- Queering Cancer—Resources, research, stories and support
- SAGE: Advocacy and Services for LGBT Elders—Works to improve the lives of LGBT cancer survivors and those at risk through education, training, and advocacy.
- The LGBT Cancer Project—Raises awareness and diminishes the threat of cancer in the LGBT community through research, education, survivor support and advocacy.
- Transgender Cancer Patient Project—Community, support groups, trusted resources, events, projects, and zines (self-published books).
by Bag It Team | May 4, 2023 | Educational Articles
May is Skin Cancer Awareness Month
As spring gets into full swing and we all look forward to spending time outdoors, being smart about sunscreen is one of the best ways you can prevent skin cancer. To get all the protection sunscreen offers, here are a few tips to help your skin stay healthy:
- Use a broad spectrum, 30 SPF sunscreen every day of the year–even when you are nowhere near the water.
- Apply the sunscreen 15-30 minutes before you go outside so it gets absorbed and fully protects you. The sun’s rays damage your skin in as little as 15 minutes.
- Don’t use old sunscreen. Many sunscreens don’t have an expiration date but the protection will be its strongest for about three years. Tip: Write the purchase date on the bottle.
- Most people don’t use enough sunscreen. Use 1 ounce (picture a shot glass of sunscreen) to fully cover an adult body. Ears, eyelids, lips, scalps, feet and necks are the most forgotten areas that suffer sun damage.
- Sunscreen application is not a “one and done” process. Reapply the sunscreen every two hours, especially if you have been swimming or sweating.
The Centers for Disease Control also recommend that you stay in the shade, wear clothing that covers your arms and legs, a hat with a wide brim to shade your face, head, ears, and neck and sunglasses that wrap around as well as block both UVA and UVB rays.
Enjoy your summer!
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