Common Myths about Cancer and Pain

Common Myths about Cancer and Pain

Myth #1: Everyone experiences pain with cancer.

Facts:

  • About half of people with cancer experience pain at some point – but about half don’t.
  • Pain management is part of cancer treatment. In most cases pain can be controlled.
  • Those with advanced cancer usually experience more pain than someone newly diagnosed.

Learn about the different types of pain, its causes, and how pain can be measured  Causes of cancer pain: Pain can be caused by the tumor itself, cancer tests or procedures done, or it can occur as a side effect of treatment (surgery, chemotherapy, immunotherapy, radiation therapy).  There can be more than one cause of pain. Some pain ends when treatment ends but some pain can be ongoing and chronic. Types of Pain:

  • Acute pain – this type of pain comes on quickly but it does not last long. It can be mild, moderate, or severe.
  • Chronic pain -this type of pain can be consistent or it can get worse, lasing a long time. Again, it can be mild, moderate, or severe.
  • Breakthrough pain – this type of pain is usually a sudden increase in intense pain that “breaks through” the pain medications being taken to control pain, typically between does. It lasts for a short time. There are medications specifically used to treat this type of pain.

Pain Severity: Everyone experiences pain differently. It’s a good idea to keep a record of your pain to share with your healthcare team. Using one of the customizable logs in section 2 of Bag It’s My Companion Guidebook is an easy way to track your pain. You can use the scale below to assess your pain’s severity and type, noting when, where, how it feels (e.g. “burning,” “stabbing,” “throbbing) and other pertinent details on the form. Make copies to give to your healthcare team at your next appointment. This will help them to determine a pain management plan tailored just for you. Using a scale from “0” to “10”:

  • 0 means no pain
  • 1 to 3 means mild pain
  • 4 to 6 means moderate pain
  • 7 to 10 means severe pain

 

Myth #2: Only opioid medications relieve cancer pain.

Facts:

  • Non-opioid medications may be effective pain relievers depending on the type of pain someone is experiencing.
  • Palliative surgery or radiation therapy is sometimes performed to ease symptoms and increase comfort.
  • Palliative (supportive care) is care that focuses on relieving the symptoms of cancer, like pain, and other impacts on your physical, emotional, mental and spiritual well-being.
  • Physical therapy, exercise, complementary and integrative medicine therapies such as acupuncture, massage and relaxation techniques are possible ways to manage pain without medication.

A personalized pain management plan prescribed by your healthcare team could include one or more of the above treatments to improve your quality of life. It’s important to talk openly with your healthcare team if you are experiencing pain. In addition to describing the pain in detail, let them know how it is impacting your daily life.

Palliative care (supportive care)

Palliative care is not hospice care. The aim of palliative, or supportive, care is to improve quality of life and maintain independence by reducing symptoms, managing pain, and supporting patients and their families. The aim of hospice care is to help the patient approach the end of life with peace, respect, and dignity, and it includes palliative care. Palliative care is an approach to care that addresses the person as a whole, not just their disease. The goal is to prevent or treat, as early as possible, the symptoms and side effects of the disease and its treatment, in addition to any related psychological, social, and spiritual problems. You can receive palliative care at any age and at any stage. Receiving palliative care does not mean that you will no longer receive treatment for the disease. People often receive treatment to slow, stop, or eliminate cancer in addition to treatment to ease discomfort. In fact, research shows that people who receive both types of treatment often have less severe symptoms, a better quality of life, and report they are more satisfied with treatment. Ask your healthcare team about the ways palliative care might be helpful to you and your family.

Additional Resources on Pain

ASCO Answers: Managing Cancer-Related Pain

Cancer Pain Control: Support for People With Cancer

ASCO’s booklet, Palliative Care

Bag It as a Roadmap

Bag It as a Roadmap

Bag It. Guiding one through cancer.

So, it’s National Read a Roadmap week, and I love a bizarre holiday that connects to many things I love and makes me smile. First, I recall being on a road trip a few years ago, and yes we had GPS on our phones and were using that, when we were trying to find maps of the area we were in just because (okay maybe I wanted to use them later to scrapbook the adventure). At the 3rd gas station we found one, it was dated and covered in dust and the employees thought my friend was crazy for wanting one but we were thrilled!

Then a friend was visiting me and in the side panel of my car I have a few maps, because you never know when you might need one. She found this hilarious and took a picture of it to post on social media asking people if they even knew what they were – she couldn’t believe that I had them in my car. (FYI: I have used them from time to time.)

Now I love technology and frequently use digital maps, but it’s always good to have a back-up plan as we know that technology doesn’t work everywhere or your might not have your phone charged or maybe you just appreciate having things in a printed format. Print makes things easier to share and more readily available (but I encourage you to order those maps in advance of your next trip).

How does reading a map and my random stories (that made me smile with the memories) connect to cancer and Bag It?

Reading a roadmap takes some practice, just like understanding cancer. The Bag It bag works as a guide to help those impacted by cancer understand more about their diagnosis and cope with the bumps along the way. When you receive a cancer diagnosis you don’t get the map (digital or print) to go with it.  You don’t know the vocabulary, the questions to ask, which treatment to take, or which exit has a support network. You need something to help familiarize you with this experience. Your healthcare team is one guide and a Bag It bag is another valuable guide.

The take-everywhere binder (yep, even on that road trip) helps organize appointments and records (similar to your brochures and itineraries). The booklets provide coping tips, support information, reliable cancer information and questions to ask. It’s all in the bag! You won’t feel lost during or after treatment with Bag It as your guide.

 

Bag It wants to ensure anyone who wants or needs a bag has them available to them. You can order one as a gift for someone when they are diagnosed with cancer to help them cope or you can order/request one for yourself. They are a doctor-recommended resource for anyone with any type of cancer.

If you don’t currently know anyone who could benefit consider participating in our Spring 2021 Fundraiser – Gift a Bag It Bag. With a $41 contribution you can help provide a source of comfort and the printed navigation tools to help a patient throughout their cancer treatment and beyond.

“Let’s Taco ‘Bout Cancer!”

“Let’s Taco ‘Bout Cancer!”

Bag It had the opportunity to be part of the University of Arizona Cancer Center Community Outreach & Engagement  “Let’s Taco ‘Bout Cancer!” Webinar Series. We were able to share information and details about the Bag It bag and what is offered.

Listen to the Presentation graphic

Making the Most of Your Bag It Bag

Making the Most of Your Bag It Bag

Did you receive a Bag It bag? Want some tips on how to make it work for best for you? Want to know more about what’s in the bag? Check out this video and find out how to Make the Most of your Bag It bag, whether you are the patient, a care partner or just an interested friend.

Ten Tips to Maintain Financial Health During and After Cancer

Ten Tips to Maintain Financial Health During and After Cancer

  1. Have a conversation with your health care team about your treatment plan and the expected cost. Talk to your doctor about how cancer treatment could affect your ability to work.
  2. Understand your health insurance coverage. It is vital that you pay your health insurance premiums on time and in full. If you don’t have health insurance, immediately find out if you can obtain a policy or if you qualify for Medicaid.
  3. Meet early with your oncology social worker, navigator or advocate, and be candid about any financial difficulties and other needs you have. They are there to help you manage your cancer care costs.
  4. Be informed about your legal rights and all benefits available to you through your employer: disability insurance, accommodations in your job duties, hours/leave time. Your spouse should do the same with their employer.
  5. Prepare a budget. Organize and keep track of your bills. Verify insurance benefits are correctly applied. (Ask a trusted family member or friend to help you with this.) Appeal insurance claim denials. (Ask a member of your health care team to help with this.)
  6. If you are experiencing financial hardship, explain your situation to creditors and medical providers and ask for their help. You may be able to negotiate a discount or more time to pay your bills.
  7. Tap into the expertise of nonprofits in the cancer community. They can help you navigate resources and find assistance with costs related to treatment, co-payments, prescription drugs, basic needs, transportation, childcare as well as insurance matters and other support services. They can often help you apply. Several organization offer free services from their navigators and social workers: CancerCare, Livestrong, PAN, CSC, CancerCare pub
  8. Look into federal and other programs in your state that can help cover expenses and replace income if you can’t work during and after treatment. Apply quickly if you are eligible for benefits.
  9. Consider other of income: retirement accounts, available credit, personal loan, cashing in life insurance policy, sale of real estate or personal property.
  10. The financial burden of cancer can impact your physical and mental well-being. Asking for help can be hard but allowing others to lend a hand alleviates stress for you and your loved ones and lets your focus on your recovery.