Changing Just One Thing Can Improve Your Health

Changing Just One Thing Can Improve Your Health

In recognition of National Wellness Month, we wanted to look at how we can all take some simple, purposeful steps to be more active, manage stress, improve our mental and physical health and more.  Not just for the month of August but all year long.

Whether you want to focus on physical, emotional, spiritual, or social wellness, it is important to pick one thing and get started with small steps that will help your new healthy habits stick around for the long term.

Build Wellness Into Your Life

Making a plan sounds daunting but wellness goals should be simple, easy to adopt and fit into your lifestyle.

Here are a few examples of what your wellness plan might look like:

  • I want to focus on being active. I am going to start sitting less every day by setting an alarm to remind me to get up and walk for 1 minute every hour. Tip: Set that alarm in another room so you have to get up to turn it off.
  • I want to focus on self-care. I am going to start by taking a 15-minute break, in a quiet location, with a book and my coffee/tea/favorite beverage on Monday, Wednesday and Friday. Tip: Create a favorite space (inside or outside) that is only used for taking a moment out of your day to decompress.Photo of Lavender with Wellness tag
  • I want to focus on managing stress. I am going to incorporate a 4-4-4 breathing exercise at 10 a.m. and 2 p.m. for 1 minute (breathe in for a count of 4, hold for a count of 4 and exhale for a count of 4). Tip: Practice this technique at any point in your day you might need to manage stress (driving, during a work meeting, while having a difficult conversation).
  • I want to focus on physical and mental health. I am going to practice yoga for 20 minutes 3 times this week. Tip: purchase an online plan or sign up for a class (committing money helps us also commit the time).
  • I want to focus on healthy eating. I will incorporate 1 fruit or vegetable into at least 2 meals every day this week. Tip: Focus on what is in season so it will be tastiest and also give you variety throughout the year.
Looking for a little inspiration to get started?

Here are some other ideas to put you on the road to a healthier, happier life:

  • Increase your water intake. The Mayo Clinic tells us how much water is enough.
  • water bottle graphicMonitor your sleep and make adjustments for better sleep habits.
  • Join a walking, or aerobics class.
  • Learn to meditate. Mindful.org gives you some meditation tips. \Plan a day of fun activities you love.
  • Visit with friends and family.
  • Start a gratitude journal.  PositivePsychology.com can get your started.
  • Practice being your own cheerleader with positive self-talk.
Setting Goals That Stick

We’re talking about wellness goals that are easy to incorporate into your lifestyle. But if you want some help with setting a goal, here are a few steps you can take to create a wellness plan that will endure:

  1. Pick a topic you want to focus on.
  2. Set 1 goal using the S.M.A.R.T. method
    1. Specific: The goal should be very precise with no room for misinterpretation.
    2. Measurable: The goal should be quantifiable, and progress should be easy to track.
    3. Achievable: The goal should be attainable — not outlandish or unrealistic.
    4. Relevant: The goal should contribute to your broader, overarching goals.
    5. Time-bound: The goal should have a defined start and end date.
  3. Share your goal with a trusted friend or family member. Accountability can often help encourage our success. You also might find a goal buddy!
  4. Write it down and put it somewhere you can see it every day.
Other Resources

Defining Wellness

The Global Wellness Institute defines wellness as the active pursuit of activities, choices and lifestyles that lead to a state of holistic health.  – Read more about the Global Wellness Institute’s perspectives

Wellness at Work

Since we spend much of our waking hours at work, here is a WebMD Health Services’ article that shows how to promote employee wellbeing.

Stay tuned for our August podcast for more on the five dimensions of wellness.

The Bag It Bag — Reviewed.  Refreshed.  Renewed.

The Bag It Bag — Reviewed. Refreshed. Renewed.

Every 18 to 24 months, we gather a committee of cancer survivors, care partners, oncology care providers, and nonprofit partners to conduct a review of the Bag It Bag. They assess how the current bag content and design are meeting the needs of people with cancer, their care partners, families, and the healthcare providers who care for them. The group also considers how the Bag could be improved.

Review, Refresh Renew graphic

The feedback we received from our recent review was thoughtful and insightful, as always. The consensus was that the significant revisions made to the Bag in 2019 continue to benefit the quality of the materials. Some helpful suggestions on ways to refresh and enhance some of the content were also offered.

The Covid-19 pandemic did not prevent us from completing this important process or continuing our work. For the Bag It Team, the challenges it brought reinforced that this valuable resource is critical for those dealing with cancer, renewing our commitment to our mission of educating, supporting, and empowering those impacted by cancer.

2022 Bag It Bag Updates

Paths to Survivorship Booklet

We added new information about dealing with potential cancer treatment side effects such as hot flashes, bone health, and genital and urinary problems, which are common for some types of cancer. It is important for people to understand all of their rights and options to best navigate their situations related to work, disability and health insurance, and managing finances. Triage Cancer provided valuable content on these legal and practical issues. 

Paths to Survivorship CoverAn overview about genetic and biomarker testing explains what they are and, when ordered by your doctor, how the test results can help your cancer care team offer you the most tailored options for effective treatment of your cancer. Your doctor will determine if this type of testing is appropriate for you.

This booklet includes helpful lists of questions you can ask your healthcare team based on where you are in your diagnosis and treatment:

  • Questions to ask your healthcare team about your diagnosis
  • Questions to ask your healthcare team about cancer treatment
  • Questions to ask your healthcare team about follow-up care
  • Questions to ask your healthcare team about late and long-term side effects
  • Questions to ask your healthcare team about living with chronic or advanced cancer

Here are printable versions of the questions to take with you to your appointments. You’ll also find other Self-Advocacy Tips and A Survivorship Checklist. 

Paths to Survivorship (and all the booklets and forms in the bag) can be downloaded for free on our website. Want to share this great publication with others? You can email it in PDF format or send them the link to the Bag it Bag.

My Companion Guidebook

It goes without saying that there’s a lot of information coming your way when you or someone close to you is diagnosed with cancer. It can be overwhelming. A great deal of paperwork is given to you by your providers, and there is much to keep track of in an accurate and consistent manner. 

My Companion Guidebook photoMy Companion Guidebook is a helpful way to organize everything in one place to ensure you have access to what you need, when you need it. We’ve made some tweaks to make it easier to sort and store your records in the various sections, and added more tips on how to make the most of your appointments.  There’s also a handy new page to keep a running list of your questions for your next doctor visit.

Blank copies of the forms to print or the fillable PDF format can be found on our Bag It Bag page

Resources, Resources, and More Resources!

Did you know Bag It’s online Resource Center houses over 150 vetted websites covering a wide range of cancer topics? Whether you want education about your cancer type or to find support services out there that can help you or your family along the way, we’ve done the legwork to save you time and to bring you resources you can rely on.

At the same time, we also realize that not everyone has equal access to or is as comfortable using the internet. That’s why we added two new pages to My Companion Guidebook listing many helpful organizations to assist with some of the most common and pressing needs that cancer can bring. (Phone numbers are also listed in case you prefer to call and speak to someone there.)

Topics include:

New Companion Book Topics 2022

To order a Bag It Bag for yourself or someone else, visit our Bag It Bag order page

 

Cultural Sensitivity Is More Than Language Translation

Cultural Sensitivity Is More Than Language Translation

Bag It Cancer continually reviews the Bag to ensure it is as helpful as it can be for those living with cancer. This spring we conducted research through a series of interviews and focus groups of Latino and Hispanic survivors, caregivers and other stakeholders for input on how to better address their values, beliefs, language, and culture in the Spanish Bag.

We heard about a variety of topics that would be beneficial to include in the Spanish Bag, or address in a different way in the Bag.

Photo of Spanish Bag It bag contents

For example, to many people, cancer=death. If someone is diagnosed with cancer, the only possible outcome is death. We hope to dispel this commonly-held misconception and others by educating Bag users and families about the evidence-based facts about cancer. We gained more insight about the importance of family in the Latino and Hispanic communities. Family members often take part in the decision making about treatment. Their involvement in that process, and as caregivers, can have huge impacts on a patient’s wellbeing.

We also learned that if nutritional information in the Bag isn’t tailored to culturally relevant foods, patients and caregivers may not make necessary changes to their diet during and after treatment. We plan to include recipes from Latina kitchens that adapt favorite Latin dishes to make them healthier – lower in fat, richer in fiber and vitamins, but still tasty.

Latinos and Hispanics are disproportionately affected by poor conditions of daily life which are shaped by a variety of structural and social position factors (such as income, education, occupations, cultural values, and social support systems), known as social determinants of health. These factors impact their cancer care and survival. We can’t overcome all of these barriers, but we can do our small part by educating and guiding Latinos and Hispanics with a more culturally-tailored Bag It Bag.

We look forward to introducing the new bicultural Bag It Bag to you and your patients at the end of the year.

Is Your Oncology Patient-Care Team Complete?

Is Your Oncology Patient-Care Team Complete?

Every cancer patient deserves the best care possible. There isn’t a provider on the planet who disagrees with that. For many cancer centers and health systems, the best means putting together an all-star team capable of meeting the full needs of the patient, including “financial, psychological, social, logistical or related to communication.” That is why no oncology team is complete without an Oncology Nurse Navigator.

An Oncology Nurse Navigator is a clinically trained individual (typically a professional RN with oncology-specific clinical knowledge) who offers individualized assistance to patients and caregivers to help address barriers to timely and appropriate cancer treatment. They advocate for their patients throughout the cancer care continuum from diagnosis through survivorship and coordinate all components involved in cancer care, including surgical, medical, and radiation oncologists; social workers; patient education; community support; financial and insurance assistance; etc. They perform a vital role on the patient’s cancer care team.

Bringing on an Oncology Nurse Navigator is the first step. Equipping them with the best tools available is the second. That is why so many providers turn to Bag It Cancer. Oncology Nurse Navigators can assist patients with various issues beyond healthcare; comprehensive patient education tools like Bag It matter a lot in these situations. By providing a Bag It Bag, an Oncology Nurse Navigator can also help a patient learn to advocate for themselves and introduce them to reliable information that can often be difficult to find.

Mary Verplank photo Nurse Navigator, Retired

”When meeting patients for the first time, we often find the devastation of the new Cancer diagnosis to be overwhelming.  They are not sure who to turn to, or where to begin.  As certified Nurse Navigators, our first meeting is a cornerstone for care needs and coordination.

Having the Bag It Bag helps to introduce our ability to support and stabilize the care they need.  At the same time, we use it to education them in essential ways.  Lastly, it is a place to keep things from getting misplaced, and helps keep the Cancer ‘in its place’ in their lives from the start.”

Anyone that has ever met with an Oncology Nurse Navigator knows that support like patient education matters a lot and can be the difference between a good and bad experience for patients and caregivers.

So, if you don’t already have an Oncology Nurse Navigator on your team, or are interested in becoming a certified navigator, reach out to our friends at the Academy of Oncology Nurse & Patient Navigators (AONN).

If your practice needs to upgrade your patient education materials to match your new all-star team, please reach out at cj@bagitcancer.org and learn how Bag It can enhance your practice.

 

 

 

A Healthcare Provider’s Role in Patient Education

A Healthcare Provider’s Role in Patient Education

For many patients, except for a fellow cancer survivor, no one other than their healthcare provider understands how devastating a cancer diagnosis can be. When worry or smiles turn to fear, anger, or sadness, providers are there.

While some providers have long recognized the value of providing comprehensive patient education materials, others have missed the mark by giving little to none, placing the burden on patients to find their own resources or information. When implemented correctly, patient education goes beyond informing patients about their cancer and treatment. It can play a crucial role in helping patients cope better, learn how to become a self-advocate, and how to be engaged in their care.

At Bag It Cancer, we believe patient education is primarily the provider’s responsibility. Most Bag recipients receive their Bag It Bags directly from their providers, ensuring that they’re receiving the trusted information at the right time. So yes, please continue to give your patients the Bag It Bag if you are a current Bag distributor. If you are not, consider how offering this critical aspect of patient care benefits both patients and clinicians.

Studies show that patient education can help patients be more informed, more engaged in their care, better equipped to ask better questions, more compliant with treatment, and enjoy a better quality of life. Providers who directly provide quality education materials like the Bag It Bag can be confident that their patients are accessing reliable information rather than obtaining misinformation that could be dangerous.

Ideally, here is what a patient education session for a newly-diagnosed patient would look like:

A provider walks in with a Bag It Bag and opens it up to introduce it to the patient. The patient, having been informed of their diagnosis, opens My Companion Guidebook to section 1 (My Personal Details) to see that the provider has already written in the details of their current diagnosis. The provider shows them  copies of their recent scans and lab work which have already been added to the appropriate sections and discusses the results and next steps. The patient would also be directed to one of the booklets that the provider feels would be most helpful to them at that time. Now a difficult appointment where many patients often leave dazed and confused has become one where the patient leaves feeling cared for, prepared, empowered, and with a better sense of what to expect.

If you or your team are interested in seeing how Bag It can improve your oncology patient education services, please feel free to reach out at crispin@bagitcancer.org or call 520-337-2800.

 

6 Ways to Mind Your Mind During Cancer

6 Ways to Mind Your Mind During Cancer

We all know that a cancer diagnosis can be life-changing for everyone. Its impact isn’t just reserved to the physical changes experienced by patients, but also the mental health toll it can have on patients, families, friends, and entire communities. In recognition of Mental Health Awareness Month, our team at Bag It would like to share some helpful tips for you and your loved ones to ease your journey to survivorship. 

Number one

Change your environment (even for a short while)

Take a vacation with a loved one. Vacations offer many mental health benefits, including reducing depression and anxiety. Your vacation doesn’t need to be extensive; even a weekend road trip can help reduce stress. A study found that “a short, three-day leisure trip reduced perceived levels of stress and reduced levels of the ‘stress hormone’ cortisol.” Another option is to take some time to enjoy nature. A 15-30 minute walk outside offers a chance to get some fresh air and reset. Maybe a stroll at the park or a hike on a trail might do the trick.

Number 2

Take advantage of support programs in your community

Support groups are a safe, confidential space to share experiences and connect with others navigating similar challenges. They are often available in person or virtual, and you may find one at a local religious group, cancer center, or local cancer nonprofit. Studies have shown that attending a support group can lead to a better quality of life due to improved mood, self-image, and increased coping ability. 

Number 3

Take some time to count sheep

Sleep plays a vital role in how our bodies recover. A lack of adequate sleep has previously been thought to result from depression, but “growing evidence suggests that poor sleep may induce or exacerbate depression.” Inadequate sleep can also lead to anxiety disorders and may become an added source of worry and hyperarousal, which is a key contributor to insomnia. So find a bedtime each day that works for you. Wind down with some relaxation techniques as part of your bedtime routine and maximize comfort with a great mattress, pillow, and bedding. Your body will thank you for it.

Number 4

Let’s get physical

Exercise offers so many benefits beyond just building muscle and burning calories. Moderate exercise “relieves stress, improves memory, helps you sleep better, and boosts your overall mood.” No matter your age or fitness level, 30-minutes of moderate exercise five times a week can make a lot of difference. You`ll feel more relaxed and see a change in your self-image. Physical activity is also essential for managing some of the side effects of cancer, including fatigue, weight loss, weight gain, and cardiovascular issues. It also plays a role in survivorship by reducing inflammation and joint pain.  

Additional information can be found in the booklet Living Well with Cancer and Beyond.  So find a fun activity that works for you, and get started today!

Number 5

Form your squad

People face so many challenges daily, and these challenges get even more complex after a cancer diagnosis. It’s natural for people to retreat alone and deal in silence, but it’s not always the healthiest route. Find family members or close friends you trust as members of your support network. Social interactions are good for our overall physical and mental health. Cancer doesn’t have to be the focus of every conversation, and you have the right to determine what you feel comfortable sharing with others. A laugh with friends or dinner at your favorite restaurant can also offer a greater sense of well-being and relieves pent-up stress or pain.

Number 6

Talk to your provider

It’s ok not to be ok. You are not alone. If the challenges around you become overwhelming or you find yourself in a dark place, never be ashamed to seek help. Talk to your provider or find a licensed mental health professional near you. If you have insurance, you can often find a provider in your network by visiting your insurance plan’s website. You can also visit the Bag It Resource Center to find reliable resources.

If you or someone you know is struggling with suicidal thoughts, please contact the National Suicide Prevention Lifeline. They are available 24 hours a day, everyday, Call: 1-800-273-8255 or Text: “HELLO” to 741741

Sources

Lifeskills Behavioral Health. 2022. Social Connection & Healthy Activities | Mental Health Well-Being. [online]  [Accessed 6 May 2022]

Four reasons to take a vacation. [online]  [Accessed 6 May 2022]

Unity Point Health. 2022. 5 Powerful Benefits of Joining a Cancer Support Group (Infographic). [online]  [Accessed 6 May 2022]

Suni, E., 2022. Mental Health and Sleep | Sleep Foundation. [online]  [Accessed 6 May 2022]