How Would You Rate Your Healthcare Literacy Skills?

How Would You Rate Your Healthcare Literacy Skills?

Photo of Bag It Bag contents 2022October is Health Literacy Month. A study by Health & Human Services Office of the Surgeon General showed that only about 12% of Americans have proficient health literacy skills. Unfortunately, many adults lack good knowledge about their medical condition and treatment, and don’t know how to get information that is presented in a way they can understand. People report having difficulty completing medical forms and relaying important details to their doctor about their health. They may not be able to accurately read directions to take their medicines as prescribed. Each of these common situations can be linked to poor health outcomes.

Bag It Cancer is committed to expanding health literacy for all populations. Our Bag It Bag is all about making sure that anyone with cancer can find, understand and use reliable information to make decisions about their health and guide them through a complex cancer care system.

For nearly 20 years we have worked with healthcare providers who make it a practice to give Bag It Bags to their patients at diagnosis. Having a bag of printed, clear, easy to understand materials from trustworthy cancer organizations, with customizable tools to make it their own, helps people get involved in their care and feel a bit more in control.

 

Let’s Start with The Basics in The Bag

  • My Healthcare Team. Knowing who is on your healthcare team and what their role is points you in the right direction for your questions or other assistance.
  • Cancer Words. There’s a short list of definitions for common cancer words, including cancer treatments, that you may not be familiar with but need to know.
  • Lists of Questions to Ask. Asking the right questions at the right time helps you to get the info you need about your care and other areas of your life affected by a cancer diagnosis.
  • Making Treatment Decisions. The bag walks you through what to consider as you make decisions about your treatment and care, including sources for more information about your cancer type and life situations.
  • There’s a Lot to Keep Track of…medical records, appointments, business cards, questions and notes for the doctor, and lots and lots of paperwork. My Companion Guidebook has places for everything plus checklists to simplify the steps.
  • Easy Tips and Hacks to Use Like these:
    • If you’re not sure you understand what is being said to you by your healthcare team, ask for it to be explained again in everyday language (and in your preferred language). Then repeat the information back to the person to make sure you got it right.
    • Bring someone to your appointments to listen and write down the information, or ask permission to record the visit. This will help to ensure accuracy and saves you from trying to remember everything that is said to you. Another idea is to ask for the information to be given to you in writing (and in your preferred language) so you can read it again at home.
Tucson Opinion: Arizona Congressional leadership standing up for patients

Tucson Opinion: Arizona Congressional leadership standing up for patients

Mindy Griffith - Board President – Bag ITBag It Cancer’s Executive Director Mindy Griffith’s editorial about the forward movement of the Medicare Multi-Cancer Early Detection Screening Coverage Act is featured in the Arizona Daily Star on October 6, 2022.  In it, she praises the seven bipartisan members of the U.S. House–including two members from Arizona’s Congressional leadership–for endorsing this impactful legislation that would ensure Medicare is able to provide coverage for early cancer detection tools.

Read the editorial.

Exploring Programs For CLL or Uterine Cancer Patients

Exploring Programs For CLL or Uterine Cancer Patients

Photo of Carly Boos and Kitty Silverman

In this month’s Podcast, Executive Director Mindy Griffith welcomes guests Carly Boos, CLL Society Executive Director and Uterine Cancer Program Director and Kitty Silverman, SHARE Support Center Uterine Cancer Program Director.  They talk about their partnership with Bag It Cancer and the valuable services and programs offered for individuals with CLL or uterine cancer.

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Take A Loved One To The Doctor Day

Take A Loved One To The Doctor Day

September 20 is Take a Loved One to the Doctor Day. It’s a day set aside to remind us that some of our loved ones may need a little help when it comes to seeing a healthcare provider. Many people skip regular check-ups or wait until there is an emergency to visit a doctor. This could put them at risk for serious health issues.Young woman and grandmother

There can be many issues holding someone back from a visit to the doctor’s office. Fear of doctors, needles, or tests. Access or not having a general practitioner they know. Concern about insurance coverage or other costs. Not having the time or not being in the habit of regular check-ups. Whatever is holding them back, having some extra support and encouragement could help them to schedule a much-needed visit.

When starting the conversation make sure to ask your loved one about their current health needs and write down any concerns they have regarding a visit.  It can be a delicate conversation but here are some resources to help guide you.

“Most people don’t bring up the idea of going to the doctor in regular conversation.  Days like Take a Loved One to the Doctor offer the opportunity to have those discussions with someone who might be resistant to get a routine check-up.”

Dr. Rupesh Parikh, Comprehensive Cancer Centers’ Practice President

 

 

Resources To Help Your Loved One

This AARP guide provides advice regarding how to talk to your loved one about going to the doctor, being prepared for your appointment and other useful resources. They recommend that “you might need to turn on your powers of persuasion to get your loved one to agree to see a doctor. Many people have a long list of reasons for avoiding doctors’ visits. Don’t fight every point.”

The Comprehensive Cancer Center recommends teamwork, incentives and setting up the appointment once they agree.

Once the appointment is made, the American Cancer Society has some great tips for before, during and after the visit.

The Bag It Guidebook includes forms for medications, insurance contacts, medical information, list of questions, and an appointment summary log to help you prepare for, interact during and summarize the appointments. If you don’t have a Bag It bag, you can download the forms from our website.

“Most people don’t bring up the idea of going to the doctor in regular conversation,” said Dr. Rupesh Parikh, Comprehensive Cancer Centers’ practice president. “Days like Take a Loved One to the Doctor Day offer the opportunity to have those discussions with someone who might be resistant to get a routine check-up.”